WCAP Goals
and Objectives
- Redefine Autism
as a treatable condition.
- Support the
definition of autism as a treatable condition through research.
- Thoroughly
develop a nutrition protocol for autism.
- Teach and educate
the community about autism and nutrition.
- Incorporate
therapy and therapy services which support healing.
- Teach and educate
'therapy' and 'service' integration.
- Develop community
based programs.
- Provide training
to people in the community.
- Build a support
and communication network.
- Enable autistic
people to develop their potential.
Literature
Sara's Diet
Consultations
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World Community Autism Program
Redefining Autism
WCAP aims to develop model programs that can help
redefine autism as a treatable yet complex condition affecting millions
of people in many ways. Autism was once described as a rare, lifelong
psychological condition with no known cause and no proven treatment
options. Over the past
15 years, new approaches and philosophies have grown up, offering
alternatives to the conventional view. At the same time, what was once
a rare and little known condition has sprung into the public eye, with
controversies and conflicts raging on all sides. WCAP has been deeply
involved in the new movement that seeks to redefine autism as a
multi-systemic medical condition through our writings and books, our
unique work with lutein-free
dietary intervention as
well as many years
of on-line presence.
The last few years has seen increasing evidence of a worldwide
explosion in autism numbers. The autism 'baby-boom' is already
impacting
the educational, health and social services, sending financial planning
into turmoil and service providers into panic as they try to predict
the
long-term impact of this demanding and complex condition. Educational
planners
are caught in the middle, as the numbers approach 1% of the school-age
population
in some areas. The strategy of full educational inclusion that was
adopted
in the 70's as an immutable principle has been called into question as
schools begin to fight back in legal battles. The medical community has
found itself in the center of controversy and accusations over the role
of vaccination policy, while more concrete evidence of damage to the
gut, changes in the brain, altered immune system, serotonin
deregulation, digestive problems, visual and hearing differences,
enzyme deficiencies and other signs of biological and metabolic
disturbance has reached the point where one of the leading
psychologists
in the field, Uta Frith, finally described autism as a 'biological
condition'.
Autism Consciousness
The definition of autism for many years as a set of unusual behaviors
led to the development of behavioral approaches which were seen for a
long
time as the only way forward. Parents or schools have spent fortunes on
ABA therapy. Meanwhile, the discovery of the biological aspect of
autism
has led to an explosion in dietary and medical approaches. Also, an
'Autism
consciousness' movement is now emerging, spearheaded by people with
autism
who are tired of being treated as 'cases' in need of treatment. Our
view
is that autists are people with immense potential who have been held
back
for too long by misunderstanding. The goal of any program must be to
improve
their chances of fulfilling their true potential. We believe that
improving their lives will improve the lives of all of us at the
family, academic
and community level. As the argument ‘Nature vs. Nurture’ continues
we hold with the inevitable truth that it is a little of both.
Dietary Approaches
It is not reasonable to expect that parents who are so determined to
help their children would limit their therapeutic approaches to
behaviour modification alone. What then are the alternatives to
behavioral therapies that parents and practitioners might find
available? Primarily these have been diet therapies: gluten and
casein removal, anti-yeast and anti-candida diets, allergy diets,
vitamin therapies, diets based on the lutein theory and environmental
medicine-based approaches to toxic overload. More intense therapies
have resulted from immune research and include the use of IV infusions
(transfer factor, IVIG and more recently secretin), also allergy and
B12 injections and colonic cleansing. Less invasive vitamin,
provitamin, minerals and food supplements from DMG to fat soluble
vitamin A (fish-liver oil) supplementation have been used. Therapies
which have evolved around
light and colour theories include the use of Irlen lenses and sensory
rooms (snoezelen). Therapies which have evolved around sound and
vibration
theories include auditory integration (Berard and Tomatis methods),
music
therapy and sensory integration. Movement therapies have developed as
a result of autism being described as a ‘movement disorder’.
Communication
approaches have been developed, including facilitated communication,
computer-based
programs and adapted classroom tools. All of these therapies used
together
or in isolation have resulted in reports of significant and measurable
improvements for some individuals and even recovery for others.
Various types of massage have also been used and scientific
research verifies the positive aspects of this approach. In autism such
therapies have included the ‘squeeze machine’ developed by Dr. Temple
Grandin. We believe that some biological
activities can be positively affected by a variety of different
approaches. For instance deep tissue massage or use of the
‘squeeze machine’ or secretin might result in similar biochemical
responses.
Improving the bodies digestion is of primary importance for
achieving a positive outcome for the autistic individual. Simple
resources available in most countries aide us in applying our methods
simply without the use of experimental drugs, invasive therapies or
expensive ‘name brand’ programs.
Sara's Diet - a holistic approach to
autism treatment
Sara's Diet refers to a holistic therapeutic approach which begins with
the removal of lutein from the diet. The efficacy of this approach was
discovered by Sandra Desorgher MA in 1994. As well as lutein removal,
Sandra's understanding of the autistic individual led to
recommendations for cod liver oil supplementation, DMG, essential fatty
acids, the use of digestive enzymes, removal of gluten and/or casein,
as well as the use of metabolic testing to identify abnormal
metabolism, vitamin and mineral
deficiencies and food allergies. Some of these recommendations later
became
included in the DAN protocol. Sandra understands the need for a unique
nutritional program tailored to the individual client that includes all
known and suspected essential nutrients and trace elements in a
balanced diet with minimal use of supplementation in most cases. This
ensures
healthy functioning of the immune system, the digestive system and
proper
detoxification, as well as sparing the family the expense of wasted
resources
and wasted time. It also avoids the stress of the strict GFCF diet by
identifying that very few autists need a strict removal of gluten and
casein, and for many it is contra-indicated.
Immune system changes effect
neurological development and brain chemistry
Research has shown that the amygdala (emotional center of
the brain) is involved in immune system responses, and we suspect that
continued immune response to a pathogen hinders the
development of emotional maturation, language and socialization. Taking
away the immune trigger (lutein) allows the amygdala to open up to
emotional
processes and so begin the road to recovery. Neurotransmitter function
(e.g. acetylcholine and serotonin) is also affected by immune system
interference. Removing lutein and balacing the diet appropriately
improves
neurotransmitter functioning leading to improved well-being, digestion,
detoxification, sensory feedback and signalling, and hormonal balance.
The role of traditional medicine
Traditional medicine varies greatly in approach. Treatments which gain
recognition may eventually be evaluated by the allopathic community in
an attempt to ascertain the scientific reason for successful outcomes.
One example is therapeutic massage. The role of therapeutic touch as
published in the article ‘Coming to our SENSES’ (US NEWS and world
report, Jan 13, 1997) includes:
'The skin,' writes pathologist Marc Lappe, 'is both
literally and metaphorically the body’s edge - a boundary against an
inimical world.' Yet the skin also is an organ that speaks
the language of love most clearly - and not just in the erogenous
zones. The caress of another person releases hormones that can ease
pain and clear the mind. Deprive a child of touch, and his brain and
body will stop growing. This new view of the most intimate sense was
sparked a decade ago, when child psychologist Tiffany Field showed that
premature infants who were massaged for 15
minutes 3 times a day gained weight 47% faster than preemies given
standard intensive care nursery treatment, i.e. as little touching
as possible. The preemies who were massaged weren’t eating more; they
just processed food more efficiently.
Why does it take so long for treatments like this to gain
acceptance? Historically, as allopathic and traditional medicines
were torn apart, communication between the practitioners became almost
non-existent. Now, the age of Information Technology is bringing these
approaches back together. Natural medicine has actually been bridging
the gap for generations between these seemingly different approaches.
‘Alternative’ medicine includes a broad spectrum of approaches.
Time for Action
An alternative view of autism—its epidemiology, causes and
treatment—was presented at 'Autism 2001: Place For New Medical
Discoveries' in Quebec City. The conference, under the honourary
chairmanship of Dr. Victor Goldbloom, a pediatrician and former Quebec
government minister, was organized by 'Autisme Québec et
Chaudière-Appalaches' in collaboration with 'Autisme et troubles
envahissants du développement Montréal' (ATEDM), two
non-profit autism education and advocacy groups. Sponsors were the
Quebec Ministry of Health and Social Services, and the Ministry of
Research, Science and Techology, the Quebec Office of the Handicapped
and Heritage Canada. Medical Post staff writer Susannah Benady files
these reports.
Experts call for autism to be
redefined as systemic illness
‘Condition thought to be triggered by assault
to immature immune system: Researchers are calling for a radical new
definition of autism in the wake of evidence presented here that autism
is in fact an autoimmune disease, rather than a mental handicap. No
longer can the condition just be considered a psychiatric or
neurological disorder, they argued. Autism had to be seen as a systemic
illness that has gastrointestinal, immunological, endocrinological,
psychological and neurological complications. The term "autism" is
misleading and should be replaced with a phrase that better describes
the child's physical condition. In cases where the immunological
vulnerability
or toxicity can be identified, and then responds to treatment, children
show a marked improvement in their ability to relate to others, as
well as in their academic performance. They now believe that autism is
triggered by an environmental insult or toxicity that damages the
immature and fragile immune system of a fetus, infant or very young
child. This
causes the immune system to react against body organs. The result is
a condition that has a multisystem effect, not just on a patient's
neurological
system. Most frequently, it is the gastrointestinal system or "second
brain" (gut) that shows symptoms. Many of the children also have
a long history of susceptibility to infections and experience hormonal
imbalance, such as hyperthyroidism and early puberty. Some children
even display coagulation and circulatory disorders. Research presented
at the conference showed that tests on blood and tissue samples from
autistic children have detected autoantibodies to proteins in the
brain,
gastrointestinal system and other organs. As Dr. Bradstreet puts it:
"The child becomes the victim of his immune system." Dr. Andrew
Wakefield
of London's Royal Free and University College medical school, who has
investigated the gastrointestinal symptoms of more than 150 autistic
children, said these children "show an aberration of the immune system
in some ways similar to people with AIDS."… According to research by
Dr. Anne Comi and colleagues at Johns Hopkins Hospital division of
pediatric neurology in Baltimore that was cited at the conference,
there is a
nine-fold increase in the incidence of autism in children born to
mothers with immune illnesses. Dr. Ed Yazbak, a pediatric infectious
disease
specialist from Boston, said research will not find a chromosome
responsible
for autism. He is a former professor at Brown University now studying
the medical histories of children with autism in an effort to determine
what triggered their condition. "Research will show there is a genetic
predisposition to autism. What we have to find is the environmental
insult,"
he said.
Action versus Inaction
What we have now is a time when allopathic
medicine has failed to meet the challenge of autism and as a
result inaction appears to be the general course of action for
most practitioners. As allopathic medicine evolved, the human body has
been categorized and analyzed with specialists being cultivated
to provide services in their area exclusively. On the other hand, in
the wider field some practitioners of medicine have continued to focus
on treating the whole person. This includes practitioners who
look for the cause rather than treating just the symptoms of an
illness. So, in reports from autism mailing-list archives to persons at
conferences and at large in the post-modern world we can find
allopathic doctors
using traditional American-Indian medicine, healers with degrees in
both allopathic and homeopathic medicine combining treatments, a
plant pharmacologist looking at the biochemistry of the autistic child,
paediatricians studying biochemistry and psychiatrists looking
at dietary treatments trying to unlock the doors to this 'devastating
lifelong disability’. We can also find therapists and doctors
providing treatments from their own specialization: behavior
management, massage
and acupuncture, speech therapy, art therapy, nutritional approaches,
vitamin therapy and more. We see doctors and lay people developing and
offering drugs, movement therapy, auditory integration, Irlen lenses,
dolphin therapy and more. We can also find people who take advantage of
desperate parents. For instance one doctor offers turmeric at
$20.00 per capsule as part of his treatment recommendation. Alternative
medicine offers everything from exorcism, crystal healing, light and
color
therapies to the herbs and potions of the traditional healer. If it
were
your child would you accept the inaction of most modern doctors who
rely
on the belief that autism is not treatable or would you opt for a
course
of action that offered hope of improvement, maybe even recovery?
The development of a new autism program
World Community Autism Program is moving forward with literature and
program development that we hope will contribute to a re-allignment
of resources towards realistic and powerful options that set free the
potential of these individuals.
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