Introduction: Sara’s Diet
and the IDEA
PART ONE –
SARA’S STORY
- Sara
- Sandra
- The Journey begins
- Sara joins our Family
- Journal Notes
- Impressions
- Influential People
- Center Stage
- I believe in Miracles
- Miracles in Abundance
- A Second Rainbow
- Widening Horizons
PART TWO – EXILE
- World travel on a Wing and a Prayer
- Asperger Syndrome (Sam’s story)
- Autism: a Causal Theory and Treatment
Option
- A Change in the Weather
PART THREE – RECOVERY
- Second Timothy
- Turning Blue
- Food Intolerance in autism
- Sara’s Diet
- Introduction to the restricted diet
- Essential nutrients from foods
- Practical help with implementing a
diet program
- What is Lutein?
- Autism, Pigments and the Immune System
- South Africa, World Community Autism Program
- Eating disorder in autism
- Autism, Origin – A Plausible Theory
- Autism, putting it all together
EPILOGUE
Epilogue
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From: Miracles in abundance
I finished the manuscript, typed on a word processor
with two fingers, and had it copyrighted, but Sara’s story was incomplete
without the additional knowledge of whether it was an ‘isolated’ occurrence
or whether others could get the same or similar results. I received inquiries
and people began to receive copies of Sara’s diet: Portia Iverson before
there was CAN (Cure Autism Now), Adair Renning who waited a while before
she tried the diet with Asia. A woman called who had been advised to place
her son in residential care - she was willing to try anything. Her son is
now ‘symptom free’. Jean’s son improved. Debra stopped trying to feed her
son all those colored vegetables. Jean and Debra went to work with Feingold
Association to write articles for their Newsletter. Another parent began
who had a 2½ year old son - he too is now declassified. A little
girl in Iowa was started on the diet and a year later she passed the diagnostic
testing to enter regular kindergarten without needing any special services.
Her doctor is said to have stated “If one more parent of an autistic child
says dietary intervention to me I am personally going to spank their bottom.”
There have been multiple reports of eye-color change and some of hair-color
change after 3 weeks on the diet. 28% were already gluten and casein-free,
and in this group 90% reported positive improvements with the additional restrictions.
Several have been declassified, and others state their child is now
‘symptom-free’. Some have begun the use of verbal language for the first
time - the oldest to begin to speak is a man aged 23 after 3½
weeks on Sara’s Diet.
Mark Leventer, MD, Grass Lake Medical Center, Michigan, USA
writes:
Tom is patient of mine for the past 8 months. He is now six years old and
has autism and hyperlexia. Prior to coming here, he had a history of chronic
sinusitis and otitis media, bronchitis and upper respiratory infections. He
was hospitalized once at the age of three for dehydration and has chronic
yeast infection of the genitals. He had tubes placed in his ears at the age
of 19 months.
Autism was diagnosed at the University of Michigan at around the
age of 2½. He was nonverbal until the age of three and had echolalia.
He was very socially isolated and would play with himself and not with others.
He did not know how to play with toys or other children. During the first
office visit 8 months ago at the age of five, he was playing with toys for
20 minutes appropriately. His mother was also giving him acidophilus. Two
days later he was instructed on the lutein free elimination diet for autism.
Six days later he was noted to be doing better by his mother. He enjoyed the
diet!
His mother reported that at school, the teacher and consultant compared
the notes from the prior year and felt that his learning and behavioral objectives
were being met. The patient was seen again one month later. It was noted
that there were some problems at school. He seems to have more sensory awareness
and is acting more over-stimulated. He is having more contact with his environment.
The patient was seen again 2 months later. He is doing better at
school now. His language abilities are reported to be progressing along as
he is learning. He is interacting with and playing with the other children
in a near normal fashion.
Comprehensive digestive and stool analysis was reviewed. He showed
excessive growth of pseudomonas and candida and also abnormal short-chain
fatty acids. The patient was started on Uva Ursi.
Also reviewed is 24 hour urinary amino acids. Several of these were
low as can be found in autism. The parents were going to obtain an amino acid
supplement which was low in methionine.
The patient was again seen in 1 month, now using the lutein-free
diet for 5 months. Doing well in school. Interacting with me during the office
exam, he was calm and appropriate. Reviewed the supplement with essential
amino acids that were deficient. He is also taking treatment for Candida.
He has some noted eczema on his cheeks. Advised to eat more fish for essential
fatty acids.
Seen again in 1 month. Still doing better in school. His attention
span, cooperation and playing with other children have all improved. Sometimes
he has a tantrum, but now recovers in a few hours whereas before it used to
take weeks. The teachers have reported improvement also in his drawings. Hair
analysis results were reviewed. There was a possibility of elevated lead
and a possible thyroid problem. He will have further testing.
Marie A. Kemner, M. A., CCC-SLP writes:
I am writing this letter in regards to Sara’s diet. It was created and tested
by Sandra Johnson. My desire to learn more about Sara’s Diet stems from my
occupation as a Speech Language Pathologist who has worked with several children
with a Pervasive Development Disorder. I currently provide service for a young
boy with Autism who began the diet last year. Since that time I have observed
many changes in this child. He has met and achieved all of this past year’s
goals already which focused primarily on the pragmatics of language such
as increasing eye-contact, conversational turn-taking, initiating and increasing
his number of communicative intentions. Although I am inclined to believe
these accomplishments may be partially the result of Sara’s Diet, I cannot
make that conclusion without scientific research proving these changes are
the result.
The word about Sara’s Diet is spreading fast. Many parents have approached
me with inquiries about the effects of the diet since I first heard about
it last year. There continues to be more and more positive testimonies about
the effects it has on children with Pervasive Development Disorders. The only
thing holding this information back is the lack of ‘peer reviewed’ scientific
research. I would greatly appreciate anything that could be done to begin
this process. Sincerely, Marie A. Kemner, M. A., CCC-SLP
Linda Cronk writes:
Three weeks ago, we started Sara’s Diet. Jonathan’s eyes went from cloudy
to very clear and sparkly. We have seen no adverse responses to food since
we started. His speech is much better. Every therapist is thrilled, because
his ABA sessions are going so well. We took him for his 6 month standard evaluation
at University of Iowa Hospital this past week. The Head of Pediatric Psychology
said that Jonathan has caught up in all deficit areas. More importantly, he
said he saw NO AUTISTIC SYMPTOMOLOGY whatsoever during the testing. Jonathan
(4 years and 3 months) was outgoing, charming, talkative, focused and cooperative
for over two hours.
If it weren’t for Sandra I don’t know how long it would have taken
me to figure out what seems so obvious now.
Lyn Larue Chenoweth (RMT-BC Registered Music Therapist, Board
certified), Michigan, writes:
I have provided music therapy for Charlie for 14 months. 8 months ago Charlie’s
mother reported he had begun strict adherence to Sara’s diet. Within 4 weeks
I noted significant changes in Charlie’s response level and behavior during
music therapy sessions as demonstrated by increased eye-contact, attention
span, attention to task, spontaneous speech and language usage, motor skills,
social interaction, and compliant behavior. Decreased mood swings were also
noted. Charlie’s ability to understand and follow directions with minimal
verbal and/or physical prompt improved significantly. To date, Charlie has
continued to maintain and/or improve abilities to respond to music stimuli
using cognitive, communication, motor, social and emotional skills.
K. Terrillion writes:
Stephen no longer has the chronic abdominal pain; he sleeps through the
night; stools no longer loose; he is a happy affectionate child and has lost
his sensory defensiveness to people, touch, lights, commotion, as opposed
to constant screaming. Able to go to new places, shows curiosity and exploration,
wants to interact with people, likes to be held and will seek comfort when
hurt, instead of not noticing when he gashed his head open. Within 2 months
of diet intervention, he has developed gross motor skills to nearly age appropriate.
Eyes changed color, eczema patch going away, skin good color, rear not broken
down. He is a totally different child. His Neurologist is surprised, but also
surprised that Stephen’s sister Sara (ADHD) is off her 100 mg Ritalin with
no ill effects - now that’s a success story.
A. Renning (author of ‘The Ultimate Treasure Hunt. Finding
the hidden child inside’) writes:
When I first read the information on ‘Sara’s Diet’, my first thought was,
“No way, this is too hard.” But after seeing our daughter’s reactions to sweet
potatoes, carrots, and winter squash, (she was swearing at her aide, throwing
her lunch box against the wall, and talking to herself in different voices)
none of which tested positive on her most recent allergy test, I was ready
to try it. After all, we had already eliminated everything but the pigmented
foods. Antifungals alone did nothing until we started ‘Sara’s Diet’. Asia
has taken most of this in her stride and we have found substitute foods for
the ones she can’t have now. . . The amount of research that has gone into
perfecting this diet is phenomenal. It is fitting that the answers are coming
from a mother. Her dedication is not only to her own daughter, but to all
our children.
T. Mullens writes:
Kirsten’s hearing seems to have normalized substantially since going on
SD. Some things still bother her (motorcycles), but she doesn’t seem to be
bothered by noises that used to make her cover her ears and run to me. Kirsten
is still improving daily. She interacts more with her friend, lets Katie
push her on the swing, laughs when I tease her or act silly, falls asleep
quite easily, and on and on . . . I’m going to write to ‘Autism Research
Institute’ and let them know what happened with DMAE. She seemed more aware
of her surroundings, less clingy, went to bed by herself . . . You’re unfolding
a miracle before our eyes.
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