Introduction: Sara’s Diet
and the IDEA
PART ONE –
SARA’S STORY
- Sara
- Sandra
- The Journey begins
- Sara joins our Family
- Journal Notes
- Impressions
- Influential People
- Center Stage
- I believe in Miracles
- Miracles in Abundance
- A Second Rainbow
- Widening Horizons
PART TWO – EXILE
- World travel on a Wing and a Prayer
- Asperger Syndrome (Sam’s story)
- Autism: a Causal Theory and Treatment
Option
- A Change in the Weather
PART THREE – RECOVERY
- Second Timothy
- Turning Blue
- Food Intolerance in autism
- Sara’s Diet
- Introduction to the restricted diet
- Essential nutrients from foods
- Practical help with implementing a
diet program
- What is Lutein?
- Autism, Pigments and the Immune System
- South Africa, World Community Autism Program
- Eating disorder in autism
- Autism, Origin – A Plausible Theory
- Autism, putting it all together
EPILOGUE
Epilogue
|
From: World travel on a wing
and a prayer
India
We arrived in the middle of the night, and it was hot. We were driven
through Bombay past the people sleeping on the pavements and in their rickshaw
taxis. I woke up in the morning and looked from our hotel window onto a
market street filled with people, sacred cows, music, shoeless children,
shrines, and the colours of spices, saris, and every kind of fruit and vegetable.
We were picked up in the evening and taken to the school for a presentation
lecture, and the next day we began to meet the children and their families.
The variety of foods and spices available on the streets of India is unequalled
anywhere in the world, and we still recommend the Indian cuisine as the best
in the world for autistic children, with very little lutein in the food
and a wide variety of grains, dahls, oils, fruit and vegetables; Indian autists
are also among the healthiest we have met anywhere, although we haven’t yet
been to South-East Asia, where the diet is also naturally low in lutein. We
bought foods at the markets and spice stores and laid them out on the table
to teach the parents how the diet works and what results to expect. After
a few days, some parents were already reporting good results, but we weren’t
to stay long enough to watch the recoveries happen this time. On the last
day we were treated to a performance of Indian dance and music by pupils
of Jai Vakeel School, and then we left, on another voyage of discovery to
Kodai Canal, a resort in the jungle clad mountains of Tamil Province at the
southern tip of India to meet the Spiritual Master Guru Sai Baba. On this,
the first trip for both of us away from ‘First World’ privileges, we began
to ask ourselves who is really blessed.
Hotlanta
After a brief stopover in Europe, we got on a plane bound for Atlanta,
Georgia with about 25 US cents in our pockets. We were homeless, but that
didn’t seem to matter anymore. We had promised to help autistic children wherever
we ended up. We used our last quarter to phone Ken who was, by that time,
used to our little emergencies, and so thanks to Ken and Western Union we
were solvent again, and spent the next few days in the airport lounge, eating
Chinese food and reading the local newspaper in search of somewhere to stay.
Autism, Pigments and the Immune System
Ken bought us a computer, so while Sandra was serving at Denny’s, Max
was setting up an Internet website and researching pigment disorders on
MedLine in preparation of our first major paper – ‘Autism, Pigments and
the Immune System’.
Understanding the cascade of responses generated by an immune system
response to lutein in the fetus, we had speculated that pigment disorders
would be found to co-occur with autism. We knew that Tuberous Sclerosis,
a commonly co-occurring condition was marked by typical pigment patches, we
had seen pigment anomalies on the skin of autists we had met, and had heard
the remarkable stories of eye color changes. Still, I was taken aback when
a MedLine search pulled up Hypomelanosis of Ito, a pigment disorder considered
rare, but with a 10% co-occurrence rate with autism! We now felt certain
enough to write our paper, describing the way the immune system would interfere
with pigment dispersion in the autistic population, as well as interfering
with serotonin and melatonin metabolism. We wrote: “As the full potential
of an immune response to a pigment of this nature is elucidated, it becomes
clear that the co-occurring disorders associated with autism may or may not
involve the immune response. However, these disorders most often do have
a connection to the pigment metabolism or genetic defects of the pigment
pathways.” The full article is included in Part III chapter six.
Later that year, we presented the paper ‘Autism, Pigments and the
Immune System’ to the South-West Autism Center in Phoenix, Arizona, spending
quality time with some of Phoenix’s autistic children and their families.
We learned about Scotopic Sensitivity Syndrome from Irlen Diagnostician and
psychologist Dr. Gwen Moore, who also introduced us to some families with
autistic children as well as fitting us each with our individually tailored
Irlen lenses. We were contacted by many parents in Atlanta, including some
of the DAN (Defeat Autism Now) doctors who wanted consultations for their
own autistic children.
Early in 1999, We were contacted by a group of families from the
Middle East who said they were building an autism center and would we come
there to oversee the program based on the results that some of their children
had using the lutein-free diet. We eagerly waited for the paperwork to come
through and were assured that the time was near. With a re-location of this
magnitude impending we did not make any real plans for remaining in the
USA. We did spend a lot of time answering their inquiries and preparing
paperwork for the planning of the autism center. I was able to quit my waitressing
job and devote all of my time to autism consultations. We didn’t advertise
– people just found us by word of mouth. They came to our home or we went
to their homes.
|